{"id":292459,"date":"2024-11-27T17:23:11","date_gmt":"2024-11-27T17:23:11","guid":{"rendered":"https:\/\/www.artefact.com\/?post_type=blog&#038;p=292459"},"modified":"2024-12-18T11:01:55","modified_gmt":"2024-12-18T11:01:55","slug":"amgen-biogen-johnson-johnson-useshare-aphp-at-the-ai-for-health-summit-strategic-vision-for-rare-diseases","status":"publish","type":"blog","link":"https:\/\/www.artefact.com\/br\/blog\/amgen-biogen-johnson-johnson-useshare-aphp-at-the-ai-for-health-summit-strategic-vision-for-rare-diseases\/","title":{"rendered":"AMGEN, BIOGEN, Johnson &amp; Johnson, USE&amp;SHARE, APHP no AI for Health Summit - Vis\u00e3o estrat\u00e9gica para doen\u00e7as raras"},"content":{"rendered":"<p><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-1 fusion-flex-container nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--link_color: var(--awb-color6);--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-background-color:var(--awb-color1);--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-content-wrap\" style=\"max-width:calc( 1440px + 20px );margin-left: calc(-20px \/ 2 );margin-right: calc(-20px \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-0 fusion_builder_column_1_1 1_1 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:10px;--awb-margin-bottom-large:0px;--awb-spacing-left-large:10px;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:10px;--awb-spacing-left-medium:10px;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:10px;--awb-spacing-left-small:10px;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-text fusion-text-1 description\" style=\"--awb-text-color:var(--awb-color5);--awb-text-font-family:&quot;PT Serif&quot;;--awb-text-font-style:normal;--awb-text-font-weight:400;\"><p>Anita Burgun, Pesquisadora Associada do Institute Imagine, Thibaud Guymard, Diretor de Inova\u00e7\u00e3o, Servi\u00e7os e Digital da Biogen, Solange Roumengous, Diretora de Parcerias Industriais da Base Nacional Francesa de Doen\u00e7as Raras Data, Corinne Blachier Poisson, Presidente da Amgen na Fran\u00e7a, e Fran\u00e7ois Macary, especialista em interoperabilidade sem\u00e2ntica da Use &amp; Share.<\/p>\n<p>Perguntas feitas por Virginie Lasserre, Diretora de Assuntos Externos da Johnson &amp; Johnson.<\/p>\n<\/div><\/div><\/div><\/div><\/div><article class=\"fusion-fullwidth fullwidth-box fusion-builder-row-2 fusion-flex-container nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--link_color: var(--awb-color6);--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-background-color:var(--awb-color1);--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-justify-content-center fusion-flex-content-wrap\" style=\"max-width:calc( 1440px + 20px );margin-left: calc(-20px \/ 2 );margin-right: calc(-20px \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-1 fusion_builder_column_1_1 1_1 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:10px;--awb-margin-bottom-large:0px;--awb-spacing-left-large:10px;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:10px;--awb-spacing-left-medium:10px;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:10px;--awb-spacing-left-small:10px;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-video fusion-youtube\" style=\"--awb-max-width:670px;--awb-max-height:377px;--awb-align-self:center;--awb-width:100%;--awb-margin-bottom:20px;\"><div class=\"video-shortcode\"><div class=\"fluid-width-video-wrapper\" style=\"padding-top:56.27%;\" ><iframe title=\"Reprodutor de v\u00eddeo do YouTube 1\" src=\"https:\/\/www.youtube.com\/embed\/apEn-QLBysk?wmode=transparent&autoplay=0\" width=\"670\" height=\"377\" allowfullscreen allow=\"autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture;\"><\/iframe><\/div><\/div><\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-2 fusion_builder_column_1_2 1_2 fusion-flex-column fusion-flex-align-self-center\" style=\"--awb-bg-size:cover;--awb-width-large:50%;--awb-margin-top-large:10%;--awb-spacing-right-large:10px;--awb-margin-bottom-large:0px;--awb-spacing-left-large:10px;--awb-width-medium:50%;--awb-order-medium:0;--awb-spacing-right-medium:10px;--awb-spacing-left-medium:10px;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:10px;--awb-spacing-left-small:10px;\" data-scroll-devices=\"small-visibility,medium-visibility,large-visibility\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-image-element\" style=\"--awb-caption-title-font-family:var(--h2_typography-font-family);--awb-caption-title-font-weight:var(--h2_typography-font-weight);--awb-caption-title-font-style:var(--h2_typography-font-style);--awb-caption-title-size:var(--h2_typography-font-size);--awb-caption-title-transform:var(--h2_typography-text-transform);--awb-caption-title-line-height:var(--h2_typography-line-height);--awb-caption-title-letter-spacing:var(--h2_typography-letter-spacing);\"><span class=\"fusion-imageframe imageframe-none imageframe-1 hover-type-none\"><a class=\"fusion-no-lightbox\" href=\" https:\/\/marketing.artefact.com\/l\/597421\/2024-12-11\/j39z22\" target=\"_self\" aria-label=\"S\u00ednteseAIFH-GIF\"><img decoding=\"async\" width=\"700\" height=\"404\" src=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27700%27%20height%3D%27404%27%20viewBox%3D%270%200%20700%20404%27%3E%3Crect%20width%3D%27700%27%20height%3D%27404%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-orig-src=\"https:\/\/www.artefact.com\/\/wp-content\/uploads\/2024\/11\/SyntheseAIFH-GIF.gif\" alt class=\"lazyload img-responsive wp-image-294955\"\/><\/a><\/span><\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-3 fusion_builder_column_1_2 1_2 fusion-flex-column fusion-flex-align-self-center\" style=\"--awb-bg-size:cover;--awb-width-large:50%;--awb-margin-top-large:0px;--awb-spacing-right-large:10px;--awb-margin-bottom-large:0px;--awb-spacing-left-large:10px;--awb-width-medium:50%;--awb-order-medium:0;--awb-spacing-right-medium:10px;--awb-spacing-left-medium:10px;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:10px;--awb-spacing-left-small:10px;\" data-scroll-devices=\"small-visibility,medium-visibility,large-visibility\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div style=\"text-align:center;\"><a class=\"fusion-button button-flat fusion-button-default-size button-default fusion-button-default button-1 fusion-button-default-span fusion-button-default-type\" target=\"_self\" href=\"https:\/\/marketing.artefact.com\/l\/597421\/2024-12-11\/j39z22\" rel=\"noopener\"><span class=\"fusion-button-text awb-button__text awb-button__text--default\">Baixar o relat\u00f3rio<\/span><\/a><\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-4 fusion_builder_column_1_1 1_1 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:10px;--awb-margin-bottom-large:0px;--awb-spacing-left-large:10px;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:10px;--awb-spacing-left-medium:10px;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:10px;--awb-spacing-left-small:10px;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-text fusion-text-2\" style=\"--awb-font-size:20px;--awb-line-height:1.6;--awb-letter-spacing:var(--awb-typography4-letter-spacing);--awb-text-transform:var(--awb-typography4-text-transform);--awb-text-color:var(--awb-color5);--awb-text-font-family:var(--awb-typography4-font-family);--awb-text-font-weight:var(--awb-typography4-font-weight);--awb-text-font-style:var(--awb-typography4-font-style);\"><p>Essa mesa redonda na AI for Health Summit 2024 concentrou-se no uso de data e artificial intelligence de sa\u00fade para tratar de atrasos e impasses no diagn\u00f3stico de doen\u00e7as raras. Com contribui\u00e7\u00f5es dos principais participantes da pesquisa, da sa\u00fade e do setor, essa discuss\u00e3o enfatizou a necessidade de mobiliza\u00e7\u00e3o coletiva para melhorar a vida de mais de 3 milh\u00f5es de pacientes na Fran\u00e7a afetados por doen\u00e7as raras.<\/p>\n<\/div><div class=\"fusion-title title fusion-title-1 fusion-sep-none fusion-title-text fusion-title-size-two\" style=\"--awb-text-color:var(--awb-color6);--awb-margin-bottom-small:8px;--awb-font-size:30px;\"><h2 class=\"fusion-title-heading title-heading-left fusion-responsive-typography-calculated\" style=\"font-family:&quot;PT Serif&quot;;font-style:normal;font-weight:700;margin:0;letter-spacing:1.6px;font-size:1em;--fontSize:30;line-height:1.47;\">A iniciativa CSF<\/h2><\/div><div class=\"fusion-text fusion-text-3\" style=\"--awb-font-size:20px;--awb-line-height:1.6;--awb-letter-spacing:var(--awb-typography4-letter-spacing);--awb-text-transform:var(--awb-typography4-text-transform);--awb-text-color:var(--awb-color5);--awb-text-font-family:var(--awb-typography4-font-family);--awb-text-font-weight:var(--awb-typography4-font-weight);--awb-text-font-style:var(--awb-typography4-font-style);\"><p>O Comit\u00ea Estrat\u00e9gico da Ind\u00fastria (CSF) promove a colabora\u00e7\u00e3o entre os setores p\u00fablico e privado para melhorar a atratividade da Fran\u00e7a na inova\u00e7\u00e3o em sa\u00fade. O programa AI, Data e Sa\u00fade do CSF concentra-se em doen\u00e7as raras, com base em iniciativas anteriores bem-sucedidas em oncologia. Essa escolha se deve ao ecossistema robusto da Fran\u00e7a, que inclui institui\u00e7\u00f5es como o Institut Imagine e o Banco Nacional de Doen\u00e7as Raras Data (BNDMR), al\u00e9m de um conhecimento significativo em IA.<\/p>\n<\/div><div class=\"fusion-title title fusion-title-2 fusion-sep-none fusion-title-text fusion-title-size-two\" style=\"--awb-text-color:var(--awb-color6);--awb-margin-bottom-small:8px;--awb-font-size:30px;\"><h2 class=\"fusion-title-heading title-heading-left fusion-responsive-typography-calculated\" style=\"font-family:&quot;PT Serif&quot;;font-style:normal;font-weight:700;margin:0;letter-spacing:1.6px;font-size:1em;--fontSize:30;line-height:1.47;\">BNDMR e seu papel<\/h2><\/div><div class=\"fusion-text fusion-text-4\" style=\"--awb-font-size:20px;--awb-line-height:1.6;--awb-letter-spacing:var(--awb-typography4-letter-spacing);--awb-text-transform:var(--awb-typography4-text-transform);--awb-text-color:var(--awb-color5);--awb-text-font-family:var(--awb-typography4-font-family);--awb-text-font-weight:var(--awb-typography4-font-weight);--awb-text-font-style:var(--awb-typography4-font-style);\"><p>O BNDMR \u00e9 um reposit\u00f3rio nacional de data de sa\u00fade que apoia pesquisas, estrat\u00e9gias de atendimento e diagn\u00f3sticos para doen\u00e7as raras. Ele coleta o data por meio do aplicativo BAMARA, usado por m\u00e9dicos em toda a Fran\u00e7a, para criar um conjunto padronizado de data. Os projetos atuais de IA incluem a automatiza\u00e7\u00e3o da extra\u00e7\u00e3o do data dos registros de pacientes e o desenvolvimento de metodologias para analisar pequenos conjuntos de data t\u00edpicos de doen\u00e7as raras, com o objetivo de acelerar o acesso ao tratamento.<\/p>\n<\/div><div class=\"fusion-title title fusion-title-3 fusion-sep-none fusion-title-text fusion-title-size-two\" style=\"--awb-text-color:var(--awb-color6);--awb-margin-bottom-small:8px;--awb-font-size:30px;\"><h2 class=\"fusion-title-heading title-heading-left fusion-responsive-typography-calculated\" style=\"font-family:&quot;PT Serif&quot;;font-style:normal;font-weight:700;margin:0;letter-spacing:1.6px;font-size:1em;--fontSize:30;line-height:1.47;\">A necessidade de um data abrangente<\/h2><\/div><div class=\"fusion-text fusion-text-5\" style=\"--awb-font-size:20px;--awb-line-height:1.6;--awb-letter-spacing:var(--awb-typography4-letter-spacing);--awb-text-transform:var(--awb-typography4-text-transform);--awb-text-color:var(--awb-color5);--awb-text-font-family:var(--awb-typography4-font-family);--awb-text-font-weight:var(--awb-typography4-font-weight);--awb-text-font-style:var(--awb-typography4-font-style);\"><p>O Institut Imagine defende a integra\u00e7\u00e3o de diversos data de pacientes, de estudos gen\u00e9ticos a imagens, em algoritmos de IA multimodais. Esses modelos analisam conjuntos hol\u00edsticos de data para melhorar o diagn\u00f3stico e o tratamento. As colabora\u00e7\u00f5es internacionais, como aquelas com institui\u00e7\u00f5es canadenses, concentram-se no compartilhamento de modelos e n\u00e3o no compartilhamento de data, garantindo a privacidade e promovendo o progresso global na pesquisa de doen\u00e7as raras.<\/p>\n<\/div><div class=\"fusion-title title fusion-title-4 fusion-sep-none fusion-title-text fusion-title-size-two\" style=\"--awb-text-color:var(--awb-color6);--awb-margin-bottom-small:8px;--awb-font-size:30px;\"><h2 class=\"fusion-title-heading title-heading-left fusion-responsive-typography-calculated\" style=\"font-family:&quot;PT Serif&quot;;font-style:normal;font-weight:700;margin:0;letter-spacing:1.6px;font-size:1em;--fontSize:30;line-height:1.47;\">A import\u00e2ncia da interoperabilidade<\/h2><\/div><div class=\"fusion-text fusion-text-6\" style=\"--awb-font-size:20px;--awb-line-height:1.6;--awb-letter-spacing:var(--awb-typography4-letter-spacing);--awb-text-transform:var(--awb-typography4-text-transform);--awb-text-color:var(--awb-color5);--awb-text-font-family:var(--awb-typography4-font-family);--awb-text-font-weight:var(--awb-typography4-font-weight);--awb-text-font-style:var(--awb-typography4-font-style);\"><p>Fran\u00e7ois Macary, da Use&amp;Share, destacou o papel fundamental da interoperabilidade para permitir que a IA acesse e interprete o data em todos os sistemas. Vocabul\u00e1rios padronizados como SNOMED CT, LOINC e ORPHAcodes garantem que o data possa ser compartilhado e analisado de forma eficaz. A Fran\u00e7a est\u00e1 avan\u00e7ando na ado\u00e7\u00e3o desses padr\u00f5es, essenciais para criar solu\u00e7\u00f5es robustas de IA e melhorar os resultados dos pacientes.<\/p>\n<\/div><div class=\"fusion-title title fusion-title-5 fusion-sep-none fusion-title-text fusion-title-size-two\" style=\"--awb-text-color:var(--awb-color6);--awb-margin-bottom-small:8px;--awb-font-size:30px;\"><h2 class=\"fusion-title-heading title-heading-left fusion-responsive-typography-calculated\" style=\"font-family:&quot;PT Serif&quot;;font-style:normal;font-weight:700;margin:0;letter-spacing:1.6px;font-size:1em;--fontSize:30;line-height:1.47;\">Contribui\u00e7\u00e3o da Biogen<\/h2><\/div><div class=\"fusion-text fusion-text-7\" style=\"--awb-font-size:20px;--awb-line-height:1.6;--awb-letter-spacing:var(--awb-typography4-letter-spacing);--awb-text-transform:var(--awb-typography4-text-transform);--awb-text-color:var(--awb-color5);--awb-text-font-family:var(--awb-typography4-font-family);--awb-text-font-weight:var(--awb-typography4-font-weight);--awb-text-font-style:var(--awb-typography4-font-style);\"><p>A Biogen, l\u00edder em terapias inovadoras para doen\u00e7as neurol\u00f3gicas raras, enfatizou a import\u00e2ncia do diagn\u00f3stico precoce e preciso. Atrasos no diagn\u00f3stico de 5 a 8 anos e altas taxas de diagn\u00f3sticos err\u00f4neos prejudicam a qualidade de vida dos pacientes. A Biogen est\u00e1 colaborando com o BNDMR e o CSF para alavancar a IA para reduzir esses atrasos, com o objetivo de fornecer resultados acion\u00e1veis por meio de projetos coletivos at\u00e9 2025.<\/p>\n<\/div><div class=\"fusion-title title fusion-title-6 fusion-sep-none fusion-title-text fusion-title-size-two\" style=\"--awb-text-color:var(--awb-color6);--awb-margin-bottom-small:8px;--awb-font-size:30px;\"><h2 class=\"fusion-title-heading title-heading-left fusion-responsive-typography-calculated\" style=\"font-family:&quot;PT Serif&quot;;font-style:normal;font-weight:700;margin:0;letter-spacing:1.6px;font-size:1em;--fontSize:30;line-height:1.47;\">Data qualidade como prioridade<\/h2><\/div><div class=\"fusion-text fusion-text-8\" style=\"--awb-font-size:20px;--awb-line-height:1.6;--awb-letter-spacing:var(--awb-typography4-letter-spacing);--awb-text-transform:var(--awb-typography4-text-transform);--awb-text-color:var(--awb-color5);--awb-text-font-family:var(--awb-typography4-font-family);--awb-text-font-weight:var(--awb-typography4-font-weight);--awb-text-font-style:var(--awb-typography4-font-style);\"><p>O sucesso das iniciativas de IA depende de um data de alta qualidade. Os l\u00edderes do CSF enfatizaram a import\u00e2ncia de avaliar a viabilidade do data e garantir a transpar\u00eancia no gerenciamento do data. Ao melhorar a visibilidade e a qualidade do data, a Fran\u00e7a pode criar um ecossistema de inova\u00e7\u00e3o em sa\u00fade atraente e eficaz.<\/p>\n<\/div><div class=\"fusion-title title fusion-title-7 fusion-sep-none fusion-title-text fusion-title-size-two\" style=\"--awb-text-color:var(--awb-color6);--awb-margin-bottom-small:8px;--awb-font-size:30px;\"><h2 class=\"fusion-title-heading title-heading-left fusion-responsive-typography-calculated\" style=\"font-family:&quot;PT Serif&quot;;font-style:normal;font-weight:700;margin:0;letter-spacing:1.6px;font-size:1em;--fontSize:30;line-height:1.47;\">Conclus\u00e3o<\/h2><\/div><div class=\"fusion-text fusion-text-9\" style=\"--awb-font-size:20px;--awb-line-height:1.6;--awb-letter-spacing:var(--awb-typography4-letter-spacing);--awb-text-transform:var(--awb-typography4-text-transform);--awb-text-color:var(--awb-color5);--awb-text-font-family:var(--awb-typography4-font-family);--awb-text-font-weight:var(--awb-typography4-font-weight);--awb-text-font-style:var(--awb-typography4-font-style);\"><p>A ambi\u00e7\u00e3o coletiva \u00e9 apresentar casos concretos de uso de IA at\u00e9 setembro de 2025, demonstrando um progresso tang\u00edvel na redu\u00e7\u00e3o de atrasos no diagn\u00f3stico de doen\u00e7as raras. Ao unir esfor\u00e7os p\u00fablicos e privados, aproveitar a robusta infraestrutura data e adotar padr\u00f5es interoper\u00e1veis, a Fran\u00e7a est\u00e1 pronta para liderar esse dom\u00ednio transformador.<\/p>\n<\/div><\/div><\/div><\/div><\/article><\/p>","protected":false},"excerpt":{"rendered":"<p>Essa mesa redonda na AI for Health Summit 2024 concentrou-se no uso de data e artificial intelligence de sa\u00fade para tratar de atrasos e impasses no diagn\u00f3stico de doen\u00e7as raras. Com contribui\u00e7\u00f5es dos principais participantes da pesquisa, da sa\u00fade e do setor, essa discuss\u00e3o enfatizou a necessidade de mobiliza\u00e7\u00e3o coletiva para melhorar a vida de mais de 3 milh\u00f5es de pacientes na Fran\u00e7a afetados por doen\u00e7as raras.<\/p>","protected":false},"featured_media":292460,"parent":0,"template":"","meta":{"_acf_changed":false,"ep_exclude_from_search":false},"blog-category":[21931],"blog-language":[2991],"class_list":["post-292459","blog","type-blog","status-publish","has-post-thumbnail","hentry","blog-category-healthcare","blog-language-en"],"acf":[],"_links":{"self":[{"href":"https:\/\/www.artefact.com\/br\/wp-json\/wp\/v2\/blog\/292459","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.artefact.com\/br\/wp-json\/wp\/v2\/blog"}],"about":[{"href":"https:\/\/www.artefact.com\/br\/wp-json\/wp\/v2\/types\/blog"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.artefact.com\/br\/wp-json\/wp\/v2\/media\/292460"}],"wp:attachment":[{"href":"https:\/\/www.artefact.com\/br\/wp-json\/wp\/v2\/media?parent=292459"}],"wp:term":[{"taxonomy":"blog-category","embeddable":true,"href":"https:\/\/www.artefact.com\/br\/wp-json\/wp\/v2\/blog-category?post=292459"},{"taxonomy":"blog-language","embeddable":true,"href":"https:\/\/www.artefact.com\/br\/wp-json\/wp\/v2\/blog-language?post=292459"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}